Carrying the Burden: Lived Psychological Struggles of Caregivers Raising Children with Neurodevelopmental Conditions

Abstract

The study’s main objective is to explore the lived experiences, stressors, and coping mechanisms of caregivers of children with neurodevelopmental disorders (NDDs) in the National Capital Region, Philippines. Grounded in Interpretative Phenomenological Analysis (IPA), the study aimed to capture how caregivers make sense of their roles amidst emotional, physical, financial, and social challenges. Eight primary caregivers, all mothers, were purposively selected and interviewed using semi-structured, face-to-face interviews at a national government hospital. Data were transcribed and analyzed thematically; five major themes emerged: (1) Daily Caregiving Burdens, (2) Emotional and Psychological Stressors, (3) Social Challenges, (4) Financial Strain, and (5) Coping Mechanisms. Findings reveal that caregiving is a full-time, emotionally demanding role often characterized by isolation, anxiety about the future, and financial hardship. Despite these burdens, caregivers demonstrated resilience through structured routines, family adaptation, faith, and acceptance. The study underscores the urgent need for accessible, culturally sensitive interventions that support both child and caregiver well-being. Recommendations include expanding mental health services, implementing community-based support, implementing inclusive education programs, and developing caregiver-focused policies. This research contributes to a deeper understanding of Filipino caregiving realities and offers valuable insights for clinical practice, public health planning, and future studies.